In 2012, Lauryn Taylor—a Black woman—was misdiagnosed with eczema. Another doctor thought it might be vitiligo. Then came guesses like pityriasis alba or macular hypomelanosis. But none of them were right. In reality, Lauryn had skin cancer—and it took nearly 10 years to get the correct diagnosis.
Let that sink in — for nearly a decade, Lauryn lived with a misdiagnosis while her skin cancer went untreated, simply because her condition wasn’t recognized on darker skin.
Misdiagnosis isn’t just a medical error—it’s a public health crisis with endangering consequences. Diagnosis of the wrong condition can delay the proper treatment, allowing the condition to worsen over time. Dermatologists may prescribe particular creams or medications that can cause irreversible damage.
It’s also emotionally draining. Patients may feel frustrated or anxious when their ‘treatments’ are not working, leaving them feeling hopeless and dismayed. In desperation, patients will keep paying and returning for medical consultations and buying the wrong products/treatments. This becomes a heavy financial burden.
These are licensed physicians, right? Why are so many of them misdiagnosing patients?
“Probably no doctor is intending to do worse on any type of person, but it might be the fact that you don’t have all the knowledge and the experience, and therefore on certain groups of people, you might do worse,” says Northwestern University professor Matt Groh. In fact, it’s not the dermatologists’ fault — it’s the education system.
“A large part of dermatology education involves visual recognition,” states dermatologist Jasmine Onyeka Obioha, MD. “Physicians must identify conditions from photos of skin in textbooks or shared in the classroom. But most of the patients in those images are white and only 4.5% of the images show dark skin.” As a result, most medical students don’t know how to identify the skin conditions of patients of color, leading to a disparity in misdiagnosis among racially and ethnically diverse populations.
However, the misrepresentation of racially/ethnically diverse populations extends beyond dermatology textbooks, reflecting a broader, systemic issue within clinical education and diagnostic training. “Women and racial and ethnic minorities are 20% to 30% more likely than white men to experience a misdiagnosis,” said Johns Hopkins professor of neurology David Newman-Toker. This astounding statistic reveals the racial/ethnic disparities embedded in the foundations of medical training.
It’s no wonder why physicians often struggle to diagnose conditions in patients whose appearances and symptoms fall outside of the narrow standards they were taught.
What can we do?
In order for us to promote racial equality in dermatology/health care and prevent misdiagnoses, we must:
Reform medical education:
As only ~4.5% of dermatology images feature darker skin, we need to bring that number up to at least 30%. This number ensures equitable inclusion and representation of racially and ethnically diverse populations.
We need to incorporate modules tailored to diagnosing and treating conditions presented by racially and ethnically diverse populations into the medical curriculum.
Advocate for change:
Acknowledging the issue and the devastating statistics is the first step. Now, to turn awareness into action, we must collectively raise our voices, educate others, and advocate for meaningful change. People of color deserve to be treated with dignity and equity in the healthcare system.
Available resources:
https://guides.ucsf.edu/c.php?g=1081119&p=9159811
Bibliography:
1. UCSF Library. Health Disparities and Skin of Color in Dermatology. University of California San Francisco, 2022, https://guides.ucsf.edu/c.php?g=1081119&p=9159811.
2 Skin of Color Society. Home. https://skinofcolorsociety.org/.
3. American Academy of Dermatology. Diversity, Equity, and Inclusion in Dermatology. https://www.aad.org/member/career/diversity.
4. Miller, Korin. “Doctors Told Me My Skin Cancer Was Eczema for Almost a Decade.” Prevention, 28 May 2021, https://www.prevention.com/health/health-conditions/a36230501/mycosis-fungoides-misdiagnosis/.
5. Kim, Sophia, et al. “Diagnostic Performance of Dermatologists and General Practitioners in Skin Diseases on Diverse Skin Tones.” Nature Medicine, vol. 29, 2023, pp. 1941–1948. https://www.nature.com/articles/s41591-023-02728-3.
6. Loftus, Peter. “Misdiagnosed: Women and Minorities Face Higher Risk of Harm from Medical Errors.” KFF Health News, 15 Dec. 2023, https://kffhealthnews.org/news/article/medical-misdiagnosis-women-minorities-health-care-bias/.
7. Cedars-Sinai. “Why Skin Issues in Patients of Color Are Neglected, Mistreated.” Cedars-Sinai Newsroom, https://www.cedars-sinai.org/newsroom/why-skin-issues-in-patients-of-color-are-neglected-mistreated/.
8. Pew Research Center. Facts About the U.S. Black Population. 9 Feb. 2023, https://www.pewresearch.org/race-and-ethnicity/fact-sheet/facts-about-the-us-black-population/.
9. Massachusetts General Hospital. Skin Assessment in Patients with Dark Skin Tone. Munn Center, Apr. 2023, https://www.mghpcs.org/MunnCenter/Documents/weekly/apr-23/Skin-Assessment-in-Patients-with-Dark-Skin-Tone.pdf.
10. Trafton, Anne. “Doctors Struggle to Diagnose Diseases in Patients with Darker Skin.” MIT News, 5 Feb. 2024, https://news.mit.edu/2024/doctors-more-difficulty-diagnosing-diseases-images-darker-skin-0205.
11. TEDx Talks. “Why Doctors Misdiagnose Skin Conditions on Darker Skin.” YouTube, uploaded by TEDx, 7 Oct. 2022, https://www.youtube.com/watch?v=2JUQo-PnY2g.